Tuesday, August 19, 2008

News story: One Cushing's patient helps another one suffering with the same disease....

When Colleen gained 80 pounds in a short period of time, suffered with severe acne, and multiple other symptoms of Cushing's Disease, she had no clue what was wrong. After her dad saw a story on a local news channel and told her about it, she saw a docter at the University of Pennsylvania who diagnosed her with the same disease. To see Colleen's story, watch the following video, and listen as her doctor talks about the morbidity of the disease:



The video that Colleen's dad saw may be viewed below. Jaimie's story was told in 2006 in this video, and she has since had a bilateral adrenalectomy.



This is why we tell our stories. We want to help others.

1 comment:

  1. Thanks for posting this Robin. It's reassuring and comforting to know that there are others who are suffering with Cushing's are talking about their experience.
    Cushing's is a disease that makes you feel isolated and alone and it's important to conntect with others who are going thru the same thing to keep themselves going.
    Best
    Kristin

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