I have skinny ankles. Today. I probably won't tomorrow. But I'm happy to see them even if briefly!
I am still on the same dose of keto but no longer need to take any hydrocortisone at all during the day. I'm staying awake most afternoons/evenings after work, too, which is a huge improvment over the first weeks when I started taking it.
The best part of it all is I am sleeping well most nights. However, I still have times when sleep is elusive, but not as often or as badly. I'm sure this is due to the cyclic nature of my Cushing's Disease.
I no longer have nausea, but my appetite is minimal. I do get the hungriest, still, around 9 at night! Sometimes I'm starved then. But I'm eating some breakfast--usually grapefruit because oddly enough, it's what I want. Lunch is typically a salad or some soup although that can vary if I have leftovers and take them with me. I'm not nauseated anymore at those times.
I still don't have a lot of energy. Some days are just plain ol' hard. Other days are fairly easy. My body has a mind of it's own. I'm never sure what I'm going to get. I still freeze when others don't. My joints and muscles tell me I'm not masking their problems any longer with the high cortisol. Ouch.
The best part is I'm actually losing a small amount of weight. My clothes are definitely a lot looser. Even on my high edema days, they are looser.
Speaking of edema, I wish I knew how to control it. I know that it's worse when I cycle high. That's why having skinny ankles is such a big deal!! I haven't seen my ankles for months until they made a surprise appearance yesterday! They have been hidden by flesh-colored water balloons that I can't pop and taking a diuretic actually makes them worse.
So, here's to skinny ankles, even just for a day.....
