Since my bilateral adrenalectomy, I've realized very few medical personnel understand adrenal insufficiency and adrenal crisis. There are many reasons for the above, including a BLA. Some folks are born with it. Others develop it due to an auto-immune malfunction or trauma.
An organization new to me, but probably not so new, Adrenal Insufficiency United, is making a difference in the education of the aforementioned medical folks. They have put out a great educational publication and video for EMT's, doctors, and anyone else who needs to understand the problems with treatment of those with malfunctioning or absent adrenal glands.
Their publication about emergency care touches on just about everything plus relates real-life testimonies. They also have a video which gives great instructions on how to give an Act-o-vial solu-cortef injection (below). Kudos to these folks! Thank you!
your blog is now on the www.cushingstories.com website that finally launched today! Thank you for letting us use it. Check it out on your computer as we are still working on the phone version. thank you again
ReplyDeleteRae collins