Fast forward...

.....

I meant to get back here before now to add more information. Right now, all I can do is try to not get sick from the sinus infection that is pulling me down. Yep, went to the doctor, got the antibiotic, and you'd think it would be simple as that. Not.

Since the removal of my pituitary adenoma involved transsphenoidal endoscopic surgery which went through said sinuses to the base of my brain, it is a tad worrisome. Not mention the fact that any stress on the body (good, bad, or indifferent) causes some degree of adrenal insufficiency (AI). This includes infections. In fact, it often is the first indication I have of any infection.

Back to the doctor. My doctor. She is a sweet person. In fact, she was the only one in all these years of suffering with Cushing's Disease who realized I had something "endocrine" going on until I saw Dr. Friedman in Los Angeles. However, that's about as far as she went with the understanding of the disease. Since she is willing to listen and work with me, I don't hold it against her. I do hold it against medical schools who don't teach their doctors enough about this disease. She doesn't understand AI. She doesn't understand what the tumor did or how it messed up my system even beyond removal. She doesn't get "stress dosing" to combat the AI. But she does understand a sinus infection. Just not how bad it can be. At least she now asks "what works" and then prescribes it. And she cares. There's a lot to be said for that. A whole lot.

I wish I could get rid of the headache. It won't go away.