kayquinn (kay quinn) | Good morning from the second floor, West pavilion at Barnes-Jewish Hospital! |
kayquinn (kay quinn) | I'm in the IMRI, room 217, and Erin is on the operating table. Everything looks great! |
kayquinn (kay quinn) | I'm going to spend the next few hours sending Twitter messages from the O.R., reporting on Erin Kelley's neurosurgery. |
kayquinn (kay quinn) | As we get started, let me say that out of respect for Erin and her family, should something unplanned occur, I will stop my Tweets. |
kayquinn (kay quinn) | Erin has Cushing's disease, which is an endocrine disorder that means her body produces too much cortisol. |
kayquinn (kay quinn) | These high cortisol levels in the blood can cause a host of unpleasant symptoms, from weight gain to excessive sweating to fertility trouble |
staticnrg (Robin) | RT @kayquinn: I'm going to spend the next few hours sending Twitter messages from the O.R., reporting on Erin Kelley's neurosurgery. |
kayquinn (kay quinn) | Erin's Cushing's disease has been traced to a tiny tumor on her pituitary gland. She's having that tumor removed this morning. |
kayquinn (kay quinn) | The hope is, the removal of the tumor will reduce or eliminate her symptoms. |
marsmi (Martin) | @kayquinn is live tweeting Erin Kelley's neurosurgery at @barnesjewish. Erin has Cushing's disease. She'll halt tweets if problems arise. |
kayquinn (kay quinn) | Erin's been mostly troubled by the excessive weight gain. |
kayquinn (kay quinn) | She also gets sick a lot and is tired too much of the time. |
kayquinn (kay quinn) | Here's what I'm seeing now: Erin's draped on table, and until just a few seconds ago, her face was exposed. |
kayquinn (kay quinn) | She has fiducials all over her face. They allow doctors to use an MRI to get a 3-D GPS of her brain. |
kayquinn (kay quinn) | These little markers allow surgeons to locate her tumor exactly. The tumor is so small, it can't be seen on regular imaging. |
cushings (MaryO) | @staticnrg You're saving these tweets from kayquinn? I have to go to work :( |
kayquinn (kay quinn) | Erin's face is covered now. Only her nose exposed. Surgeons will go in through her right nostril, through the spenoid sinus to pituitary. |
kayquinn (kay quinn) | Using an endoscope, they'll travel through this "tunnel" in the nose and sinus, right to the left side of her pituitary. |
kayquinn (kay quinn) | That's the side making too much cortisol. The tumor us called a microadenoma. |
shygirlxoxo (anna henderson) | Watching kayquinn twitter away during a fellow Cushie's pituitary surgery! |
kayquinn (kay quinn) | Sorry...sphenoid is correct spelling of the sinus. I'll have to brush up on my medical terminology. Sorry for the other typos. |
cushings (MaryO) | Check out kayquinn tweeting pituitary Cushing's surgery http://www.twazzup.com/search?q=kayquinn |
ItWasntADream (Natalie) | follow @kayquinn for a play by play of pituitary surgery on a Cushing's patient taking place right now at Barnes-Jewish Hosp! Amazing! |
kayquinn (kay quinn) | Surgeons are now starting to insert the endoscope through the nose to access the pituitary. This process should take 30 mins. |
EmergencyHealth (EmergencyHealth) | Following very interesting tweets from @kayquinn from the O.R. at Barnes Jewish Hospital in St. Louis |
llama_3234 (Jessica) | follow @kayquinn this morning to watch a "play-by-play" of a pituitary surgery (same one I had last May) |
kayquinn (kay quinn) | All is well in the OR. The room is dark now. Surgeons are tracking their progress on monitors. |
kayquinn (kay quinn) | I just spoke with Dr. Ralph Dacey, the neurosurgeon who will remove the tumor. He says all is going well. |
kayquinn (kay quinn) | He also told me, what makes this operation so different from others of its kind is the MRI machine that is located |
kayquinn (kay quinn) | There are only 7 or 8 hospitals in the country with this kind of MRI capability. |
kayquinn (kay quinn) | The advantage is that surgeons can ensure they've removed all they need in one operation. |
kayquinn (kay quinn) | Without this intraoperative MRI, Erin might have had to come back for a second operation if there was any tumor left behind. |
michelleimason (michelleimason) | Check out @kayquinn tweeting live from a surgery! |
kayquinn (kay quinn) | Dr. Richard Chole is the otolaryngologist working on acessing the pituitary right now. Still dark in the OR. |
BarnesJewish (Barnes Jewish) | KSDK @kayquinn is twittering a live nuerosurgery @barnesjewish |
kayquinn (kay quinn) | Dr. Jim Johnston is the chief resident helping coach me through this. He says it's dark so surgeons can see the monitors better. |
kayquinn (kay quinn) | It helps him place the endoscope, as they make their way back to the sinus. |
kayquinn (kay quinn) | No music in the OR. Dr. Dacey says he doesn't like to listen to much music as he works. OK, sometimes he does. |
kayquinn (kay quinn) | He says the residents usually hook up and i-pod and force him to listen to U2.... |
kayquinn (kay quinn) | Sorry again for the typos. |
jaelithe (jaelithe) | @kayquinn Good account you have going on. |
kayquinn (kay quinn) | Dr. Dacey says not a lot of drama in the OR. Nurses and support staff are very professional. Not like TV show ER. |
kemperartmuseum (Kemper Art Museu | RT @barnesjewish: KSDK @kayquinn is twittering a live neurosurgery |
valeriehoven (valerie hoven) | RT @BarnesJewish KSDK @kayquinn is twittering a live nuerosurgery @barnesjewish [hehe i just retweeted my own tweet] |
kayquinn (kay quinn) | Dr. Dacey tells me the whole operation should take three-and-a-half hours. |
kayquinn (kay quinn) | Going through the nose is a new approach. Surgeons used to go up under the lip. Dacey says this technique means less post-op pain/scars |
kayquinn (kay quinn) | Pituitary Gland Fact: 1 to 3% of adult population has a pituitary tumor. Very common. Most have no symptoms. |
kayquinn (kay quinn) | Dr. Chole is in the sphenoid sinus now, getting closer to pituitary. |
kayquinn (kay quinn) | He just took out a piece of bone in the rostrum, which is the outer shell of the sphenoid. |
kayquinn (kay quinn) | Pituitary Gland Fact: While tumors in the pituitary are common, only a very small number of people will develop Cushing's disease. |
kayquinn (kay quinn) | Amazing images on the monitor in the OR: we can see images being sent back by the small camera in Erin's |
kayquinn (kay quinn) | We can see Dr. Chole removing tissue as he goes deeper into the sinus. |
kayquinn (kay quinn) | I look very attractive in my scrubs and surgical bonnet. |
kayquinn (kay quinn) | I'll send a photo later. Cell phones don't work in here. |
kayquinn (kay quinn) | For the squeamish: This is not bloody at all. Very clean looking. |
advantechmedia (advantechmedia) | @kayquinn thanks for sharing, we do a lot of work for science publishers and all of this sound familiar although we're not doctors |
kayquinn (kay quinn) | I've got a Newschannel Five photographer by my side today. Joe Young is the best in the business. He's been at 5 for 25 years. |
kayquinn (kay quinn) | We'll shoot the operation and my Tweets and show the story sometime in May. |
kayquinn (kay quinn) | @advantechmedia Glad you're following! |
kayquinn (kay quinn) | @valeriehoven Thanks for the follow. |
clairecg (Claire Goldfarb) | Very cool....RT @michelleimason: Check out @kayquinn tweeting live from a surgery! |
kayquinn (kay quinn) | I'm making this sound easy, but Dr. Chole has to be very precise as he tunnels his way to the pituitary. |
kayquinn (kay quinn) | The carotid arteries run along either side of his "tunnel," so he can't veer off course at all. |
kayquinn (kay quinn) | We've reached the bone that separates the sinus from the pituitary. Soon, Dr. Dacey will cut a window in that bone to get to the pituitary. |
kayquinn (kay quinn) | All is well, all is going as planned. |
ScrubsAndBeyond (Scrubs & Beyond) | @kayquinn Will you be wearing them on-air? |
kayquinn (kay quinn) | Big thanks to Dr. Jim Johnston. He's my John Madden...providing important medical background. |
kayquinn (kay quinn) | Barnes-Jewish, thanks for making this possible. This is an incredible opportunity. |
kayquinn (kay quinn) | @lzigman Oh, Leisa, I'm so sorry! I had a vicious turn-around this morning. At Barnes by 8:30 after working late last night. |
marsmi (Martin) | @kayquinn The tweets are great! Why the formal story delay until May? Are you waiting to add Erin's input post surgery? |
kayquinn (kay quinn) | @ScrubsAndBeyond Uh, no. |
lzigman (lzigman) | @kayquinn-no worries... |
kayquinn (kay quinn) | @marsmi I'll turn it into a longer story. Our Cover Stories are three or more minutes, so I'll get extra time to put it together. |
kayquinn (kay quinn) | @WthrmnSlaughter Keep up the great work Anthony! |
kayquinn (kay quinn) | Surgeons never actually reach the brain, but they're very close. The pituitary is right behind the sinus at the base of the brain. |
annmarierussell (Ann-Marie Russell) | @kayquinn I know many of us (Erin's friends and family) are following you today, thanks for doing this. |
staticnrg (Robin) | Thanks to @llama_3234 there is a great "twazzup" for the pituitary surgery of @erinmariekelley covered by @kayquinn http://bit.ly/W9rnx |
kayquinn (kay quinn) | Dr. Chole has done his work. Now Dr. Dacey will take over. First up, he'll make the window in the bone that's between sinus and pituitary. |
kayquinn (kay quinn) | Then, he'll be able to go into the gland itself. |
kayquinn (kay quinn) | @annmarierussell Thank you all for allowing us in! She's doing great! It's really amazing. |
WthrmnSlaughter (Anthony Slaughter) | @kayquinn just trying to keep up with you! If anyone's the tweet master, it's you!!!! |
staticnrg (Robin) | RT @cushings: Check out kayquinn tweeting pituitary Cushing's surgery http://www.twazzup.com/search?q=kayquinn |
llama_3234 (Jessica) | @kayquinn Thank you for doing this. This can really raise some awareness of Cushing's (from one of Erin's fellow Cushie buddies) |
kayquinn (kay quinn) | Just to recap if you've just logged on: I'm reporting via Twitter from a Barnes-Jewish Hospital OR. |
kayquinn (kay quinn) | Erin Kelley is having a tumor removed from her pituitary gland, a small gland behind the nasal sinus, at the base of the brain. |
staticnrg (Robin) | RT @llama_3234: @kayquinn Thank you for doing this. This can really raise some awareness of Cushing's Amen...from another Cushie buddy. |
ItWasntADream (Natalie) | skull base pituitary surgery to remove tumor at Barnes-Jewish hosp. tweeted live by @kayquinn now. Good luck to patient @erinmariekelley! |
kayquinn (kay quinn) | She's hoping the operation will control or eliminate symptoms of her Cushing's disease. |
marsmi (Martin) | The @barnesjewish surgery @kayquinn is covering is on @erinmariekelley. |
kayquinn (kay quinn) | Temperature is very cool in here. |
kayquinn (kay quinn) | Dr. Dacey is now working at the base of the skull. Very vascular area. Seeing a little more blood, which is normal. |
isserman (David Isserman) | Wow, TV news anchor - @kayquinn - is Tweeting about a surgery going on right now. This may be a first for Twitter. |
llama_3234 (Jessica) | @erinmariekelley is practically a celebrity with @kayquinn tweeting her surgery=). |
cushings (MaryO) | I put a link on the top of the boards, too... pituitary Cushing's surgery http://www.twazzup.com/search?q=kayquinn |
ItWasntADream (Natalie) | @kayquinn if any would like more information about Cushing's Disease they can visit www.cushings-help.com |
cushings (MaryO) | Many thanks to @kayquinn for doing this. It will really help with Cushing's awareness and pituitary, too! |
ItWasntADream (Natalie) | follow entire thread on twazzup RT @cushings: Check kayquinn tweeting pituitary Cushing's surgery http://www.twazzup.com/search?q=kayquinn |
chzmongerswife (CheesemongersWife) | @kayquinn jim is the best. Super nice guy |
kayquinn (kay quinn) | Just got an update from Dr. Chole, the otolaryngologist. He says Erin's tissue is more fragile because of her disease. |
kayquinn (kay quinn) | They're going slower than normal because of this. The tissue bleeds more easily, so they're moving cautiously. |
kayquinn (kay quinn) | Dr. Dacey is operating now. He's through the bone and didn't have to drill to get through. This is good. Less traumatic for Erin. |
kayquinn (kay quinn) | Dr. Dacey is at the dura, the covering of the brain that also encompasses the pituitary. He'll go through that now to gland. |
ScrubsAndBeyond (Scrubs & Beyond) | @kayquinn Well, not on-air (obviously), but maybe in a news segment? Just wanted to encourage local viewers to tune-in if so. |
llama_3234 (Jessica) | @kayquinn Yep that's very common with most Cushing's patients. That's one of the reasons why you want to have an experienced neurosurgeon. |
kayquinn (kay quinn) | Cushing's is named after Harvey Cushing, the father of modern neurosugeron. He did basic research on role of pituitary, how to treat it. |
sahah86 (sahah86) | @kayquinn while I was taking photos, a strange noise (maybe scraping?) was happening in the OR. |
kayquinn (kay quinn) | @cushings It's a privilege to do it! |
kayquinn (kay quinn) | @ScrubsAndBeyond I'll find out and let you know. Not a decision I get to make. :) |
debdobson (DebDobson) | @kayquinn Wow, you are doing a great job tweeting this surgery. |
kayquinn (kay quinn) | @isserman Hi David. There've been others before this. But not many! |
isserman (David Isserman) | @kayquinn - I just added a link to your Twitter on the Cushing's Syndrome community on RareShare - http://tinyurl.com/ch8v52 |
kayquinn (kay quinn) | @debdobson Thanks for the kind words! |
ahawkcollinger (ahawkcollinger) | @kayquinn Wow, the detail on the surgery is amazing. Are you in some kind of sterilized area to do the tweets?? |
kayquinn (kay quinn) | @ahawkcollinger I'm not in a sterile area. I'm in a control room with a window into the OR. |
kayquinn (kay quinn) | @ahawkcollinger But I do have scrubs and a surgical bonnet on! Adorable blue color. |
kayquinn (kay quinn) | @isserman Thanks David! |
cushings (MaryO) | @kayquinn Cushing's community members can discuss this surgery here http://cushings.invisionzone.com/index.php?showtopic=40930 |
kayquinn (kay quinn) | Hello to Erin's family on the 10th floor. Dr. Chole just came by to tell me where you are. All is well! Hope to catch up with you later. |
llama_3234 (Jessica) | I wonder what it would be like to be family of @erinmariekelley and watching the tweets of @kayquinn - nervous or relieving? |
kayquinn (kay quinn) | Dr. Dacey is putting a needle into the area where the pituitary is now to make sure it's the gland he's reached and not a blood vessel. |
kayquinn (kay quinn) | Dr. D about to make an incision in the dura to get to the gland. |
kayquinn (kay quinn) | Joe Young took the camera back in the OR to get more shots of the operation. He's also been shooting me in the observation room on Twitter |
kayquinn (kay quinn) | @llama_3234 Good question! Apparently, they can read our Tweets, but the hospital's system has blocked them from sending messages out. |
kayquinn (kay quinn) | Dr. Chole says they're anxious to send messages out but can't. |
ItWasntADream (Natalie) | @llama re: family feelings about surgery tweets by @kayquinn.i think relieving, 3-4hrs is a long time to wait, helps to know whats going on. |
kayquinn (kay quinn) | Dr. D has opened up the dura and is trying to visualize the pituitary gland. |
kayquinn (kay quinn) | Apparently the gland is an orange-brownish colored gland, shaped like a Hershey's kiss. Very firm. (dr. j's description. love it!) |
kayquinn (kay quinn) | Dr. D is using a blunt instrument to feel around the pituitary now for any unusual tissue. |
kayquinn (kay quinn) | The hope is that by taking the left side of the pituitary, disease symptoms will go away. Remaining right side should function normally. |
BillRomer (Bill Romer) | #STL local NBC anchor/reporter @kayquinn is tweeting from the operating room viewing area while watching brain surgery! |
mykscholze (mykscholze) | > @BillRomer: #STL local NBC anchor/reporter @kayquinn is tweeting from the operating room viewing area while watching brain surgery! |
eddherwig (edward herwig) | @kayquinn |
kayquinn (kay quinn) | Dr. Dacey says he's in the pituitary and can see a milk nodule on the left hand side that he's removed and sent off to pathology. |
kayquinn (kay quinn) | Now, he's going to remove the left portion of the gland. |
kayquinn (kay quinn) | This is great news! Dr. D got what he was looking for! |
kayquinn (kay quinn) | Now waiting for lab to call back with a preliminary report on what that nodule was. Takes five days for the full report on it tho. |
cushings (MaryO) | #kayquinn Follow Erin's pituitary Cushing's surgery Live! http://ping.fm/OWQ3S |
supportsurfaces (Chuck Beye) | rt@kayquinn This is awesome. |
kayquinn (kay quinn) | There has been some bleeding, but Dr. Jim tells me its completely normal. Dr. D's been working around it all, which has taken some time. |
RPMaus (Ryan Maus) | STL TV reporter @kayquinn is Tweeting from some kind of surgery... Bizarre |
cushings (MaryO) | @kayquinn great news!!! |
kayquinn (kay quinn) | Not planning to do intraoperative MRI because her pre-op scans were normal. |
kayquinn (kay quinn) | @RPMaus 28 year old Erin Kelley, mother and wife, is having the left part of her pituitary removed to alleviate symptoms of her Cushing's. |
kayquinn (kay quinn) | @RPMaus She had a tumor or nodule on it. The neurosurgeon just removed it and sent it to the lab. |
kayquinn (kay quinn) | @RPMaus All happening on a second-floor operating room at Barnes-Jewish Hospital in St.Louis |
kayquinn (kay quinn) | Dr. Jim tells me the pituitary sits in a "web of veins" and that's why there can be bleeding during surgery. |
kayquinn (kay quinn) | It's very normal. Also, because of all of the excess cortisol in Erin's blood stream, those veins have become very fragile. |
kayquinn (kay quinn) | A lot of the left side of the gland is out now. |
kayquinn (kay quinn) | Dr. D now looking at the bone fragments Dr. Chole took out. Looking at closing the "window" or hole already! |
kayquinn (kay quinn) | Left side of the gland completely out. Peeled it off. Tofu-like substance. |
kayquinn (kay quinn) | Now, surgeons will take a little fat pad from the abdomen to also use to seal the hole. |
brianarygg (Briana Rygg ) | RT @RPMaus: STL TV reporter @kayquinn is Tweeting from some kind of surgery... Bizarre |
llama_3234 (Jessica) | @kayquinn Usually this is done because of a CSF leak, is that what happened here, or do you know? |
kayquinn (kay quinn) | Dr. D placing gel foam used to minimize bleeding. This is all part of the process of finishing the operation. |
kayquinn (kay quinn) | I'll be away from the computer for several minutes. Going to grab a quick interview. I'll be back to wrap it all up. Awesome experience! |
supportsurfaces (Chuck Beye) | @kayquinn Ask Dr D what kinfd of pad is on the OR table. I provide BJC with the Roho pads. |
RPMaus (Ryan Maus) | @kayquinn Wow, sounds really interesting! Cool thing to Tweet... What has the response been like so far? |
kayquinn (kay quinn) | Erin's surgery is complete! She'll leave any moment for the recovery room. |
kayquinn (kay quinn) | Thanks to all who made this possible: Erin, BJ Hospital, KSDK. It was an incredible experience! |
cushings (MaryO) | RT @cushings: @kayquinn Cushing's community members discuss this surgery here http://cushings.invisionzone.com/index.php?showtopic=40930 |
kayquinn (kay quinn) | Funny to see all the lights on in the OR. It was dark for 99% of the operation. |
kayquinn (kay quinn) | I'll keep you posted on when you can watch the story on Newschannel 5! |
kayquinn (kay quinn) | @RPMaus Response has been great! Lots of interest! |
agoodeye (lisa jennings) | @kayquinn That's good to know. Is she a friend or someone you're covering for KSDK? |
kayquinn (kay quinn) | @llama_3234 Erin has Cushing's disease and docs think the tumor on her pituitary was causing it and all of her symptoms. |
cushings (MaryO) | Great news! Thanks for the tweets. @kayquinn Erin's surgery is complete! She'll leave any moment for the recovery room. |
ItWasntADream (Natalie) | @kayquinn Thanks Kay! Can't wait to see the story. Hoping for a quick recovery for @erinmariekelley. |
kayquinn (kay quinn) | @supportsurfaces It's not a Roho pad. Just a foam rubber egg crate. |
cushings (MaryO) | @kayquinn A lot of us "Cushies" are out of area. Will the story be online? |
kayquinn (kay quinn) | @cushings It will be on-line the day it airs. I'll let you know! |
cushings (MaryO) | @kayquinn Fantastic! Thanks |
cushings (MaryO) | @kayquinn Thanks again for doing this. Lots of Cushing's patients are following this story. Thanks to @erinmariekelley for sharing, too! |
llama_3234 (Jessica) | @kayquinn right I have/had it, but when a fat patch is used in a pit surgery it is because of a CSF leak, jw if that was the case here |
kholleman (kholleman) | Just got done with KayQuinn Twittering brain surgery. Terrific experience. They went through the nose to get to the pituitary glad. |
supportsurfaces (Chuck Beye) | rt @kayquinn Thanks for thi info. How long was the patient on the table, |
cushings (MaryO) | Check out kayquinn tweeting Erin's cushing's pituitary surgery! http://www.twazzup.com/search?q=kayquinn |
kayquinn (kay quinn) | @llama_3234 The fat pad was to ensure there would be no leak. But surgeons said they didn't detect csf on the table. |
kayquinn (kay quinn) | @supportsurfaces Five hours or so. |
kayquinn (kay quinn) | @cushings Thanks for following me! I was honored to do it. |
valeriehoven (valerie hoven) | @erinmariekelley congrats on a successful surgery @barnesjewish (covered by @kayquinn via twitter) |
kayquinn (kay quinn) | @agoodeye No, just a internet saavy patient who has been blogging about her disease and was excited I would Twitter from the OR. |
kayquinn (kay quinn) | @agoodeye It was actually the hospital's idea. |
debdobson (DebDobson) | @kayquinn You are welcome. |
supportsurfaces (Chuck Beye) | @kayquinn Thank you. |
valeriehoven (valerie hoven) | RT @RPMaus STL TV reporter @kayquinn is Tweeting from some kind of surgery... Bizarre |
supportsurfaces (Chuck Beye) | @kayquinn @barnes-jewish Just read throuh all tweets. It was fascinating. Thanks |
BarnesJewish (Barnes Jewish) | KSDK's Kay Quinn's "Tweets" of the live neurosurgery are complete and can be read @ kayquinn |
BarnesJewish (Barnes Jewish) | KSDK's Kay Quinn's "Tweets" of the live neurosurgery are complete and can be read @kayquinn |
stephaniethum (Stephanie Thum) | A St. Louis TV reporter Tweeted from a live surgery today at @BarnesJewish. Follow @kayquinn to see the Tweets. #hcsm |
Tojosan (Todd R Jordan) | #STL local NBC anchor/reporter @kayquinn is tweeting from the operating room viewing area while watching brain surgery! (via @BillRomer) |
BarnesJewish (Barnes Jewish) | Complete chronology of kayquinn tweets from the OR http://cushingshelp.blogspot.com/2009/04/pituitary-cushing-surgery-twittered.html |
ImBFC (Belinda) | @kayquinn cool Twitter stream! I learned a lot and I'm looking forward to seeing your story. Best wishes to Erin in her recovery :-) |
CAMURPHY (Craig Murphy) | @kayquinn excellent tweets yesterday; amazed that they are able to go after something so small-my wife's tumour was the size of a fingernail |
CAMURPHY (Craig Murphy) | http://url.ie/1i6o @kayquinn coverage of @erinmariekelley operation - similar to my wife's treatment - amazing what can be done these days |
kayquinn (kay quinn) | @CAMURPHY Thanks for the Tweet! It was very exciting, and I'm glad you would follow along. |
kayquinn (kay quinn) | @staticnrg Thanks for the Tweet and thanks for following the surgery. It was amazing! |
The whole process took a little over 3.5 hours. Erin is recovering and she tweets as @erinmariekelley.
To read more about it:
St. Louis Reporter Twitters Live Surgery at Barnes-Jewish
Cushing's Help Website and Message Boards
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