One of my friends, whom I first met several years ago through our common disease and whom I have now met in "real life", has a fairly new blog called "Living With Stripes". She shares some great info. One of her posts starts out like this:
“Our study shows that BLA (bilateral adrenalectomry) for persistent Cushing's disease provides patients with considerable improvement in their Cushing-related symptoms with concordant increase in their quality of life. After BLA, patients may attain the same (or better) quality of life as patients initially cured by transsphenoidal pituitary tumor resection. We think that BLA is a safe and effective treatment of the 10% to 30% of patients who fail initial therapy for Cushing's disease, and should be considered preferentially over other available therapies” http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1877068/
I like that statement!
Today I am 25 days post-op my BLA surgery and my mantra is ‘slow and steady’. I thought I would outline this step of my journey for those who may be considering a BLA as treatment for their persistent Cushings.....
To read more, click here...
To read more, click here...
Wow what a coincidence I found this page a day before Cushings awareness day. I was just diagnosed with cushings syndrome. please check out my blog http://onedelicateheart.blogspot.com/
ReplyDeleteI wasn't sure of where the living with stripes tag line had come from (plus zebra) and honestly it was one of the best, spot on, PERFECT IN EVERY WAY thing I have ever heard!!!
ReplyDeleteThank you for the link to her blog, I'm heading over there now to read, and I've been looking through yours and I absolutely love it! Xo cushie love !