Another Cushie Has Died (click here to read about it on MaryO's blog).MaryO said it well. This disease kills unless it's treated. Those it doesn't kill are still living with a poor quality of life. So few in the medical community seem to understand how deadly it can be. This just hurts my heart so, and I'm so sad about it. She was so young, too.
Cardiac disease, hypertension, suppressed immune systems, and blood clotting disorders are just a few of the serious side effects of this disease. I hate this damned disease. I hate it.
(Picture in memory of Martha)
I hate this disease, too.
ReplyDeleteI was just talking to a friend today about how I'd try nearly anything - even if it ruined my one remaining kidney - to have a few days where I felt good, normal, where I could wake up in the morning rested and be able to have energy for the day.
I want to go out and have fun, to be able to drive for more than 45 minutes without needing to rest, to be have people over for dinner, whatever. I hate being restricted by my lack of energy.
My endo says to cheer up. In two and a half years I can try the growth hormone again. Whoopee. Didn't work the first time and maybe gave me, or contributed to, cancer growth. Why would I want to look forward to trying that again?
I want to feel good now. Today.
I hate that this disease kills but I also hate that it's robbed me of half my life already.
I wish doctors would understand that even though we've "survived", there's no quality of life there.
I hate Cushing's. It robs so much from so many of us. :(
(sorry I veered so far off topic, Robin!)
You didn't veer off topic, Mary. It's all relative.
ReplyDeleteI'd like for your endo to experience how you feel for about a week. I would never wish Cushing's or it's aftermath on anyone, but just for a week...or a month....
I believe it would change his/her perspective.