"We are the orphans. We are the zebras in a world of horses. The ones who have a rare disease many have never heard of. We have no famous speakers to bring life to our voices. We have no sports stars to put a face on Cushing’s. We have no pink ribbons. We have no simple tests to tell us if we have it. If no one cures us, our lives will be shortened at best and ended at worst." --Steve Owens on "Should Have Seen It"Steve is a Cushing's survivor who has already had surgery to remove a pituitary adenoma. He still has full blown Cushing's, and is going to have a bilateral adrenalectomy (BLA) on Friday, January 30. He has chosen to blog about his surgery and you can read all about it at his blog "Should Have Seen It".
Steve also blogs at Thankful for the Journey and Herding Zebras.
Watch as Steve shares his experience, good and bad, happy and sad. We are pulling for you, Steve!!
No comments:
Post a Comment